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CVR Enrollment Survey


Welcome to Community Voices in Research (CVR)


Here’s what will happen next:


Step 1: Take enrollment survey (2 minutes). Answer a few questions about you and how bleeding disorders affect you.


Step 2: Take baseline survey (20-30 minutes) by following the link sent to your email. It will ask you more detailed questions about living with a bleeding disorder. You don't have to complete it all in one sitting. (Those under 18 will receive their custom surveys at a later date.)


Step 3: Access your CVR Dashboard. Now you have access to everything CVR has to offer! You will be emailed a link to your personalized dashboard where you can:

  • Have access to multiple research opportunities
  • Take both compensated and non-compensated surveys
    • Surveys are voluntary and the information will always be reported in an anonymous and deidentified manner
    • As a CVR participant, you will be notified first of any available surveys and, if they are compensated, for how much  
  • See your responses and compare them to those of other participants
  • Participate in virtual advisory boards


Ready to get started?